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NLS Reference Circulars

Blindness and Visual Impairments: Information and Advocacy Organizations

2014

Introduction

The consumer organizations listed in this reference circular provide a variety of direct services to persons who are blind and visually impaired, including advocacy and advisory services, information and referral services, counseling and employment programs, assistive devices, and publications in special format. Many of the organizations also offer guidance and support to families of persons with visual impairments. Professional organizations serve the interests of eye-care providers and those who provide educational and rehabilitation services to blind and visually impaired individuals. They offer consumer information, conduct public-awareness campaigns, and advocate for specialized services. Organizations that maintain lists of state administrators or state agencies that provide services to blind and visually impaired individuals are also listed.

Contents

Organizations Providing Direct Service to Consumers
National Professional Organizations
Organizations that Provide Reading Services
Organizations that Focus on Children
Organizations that Focus on Eye Diseases and Injuries
Organizations that Provide Financial and Other Assistance
Federal Agencies
Global Organizations
Selected Bibliography

Organizations Providing Direct Service to Consumers

American Action Fund for Blind Children and Adults (AAF)

1800 Johnson Street
Baltimore, MD 21230
(410) 659-9315
(410) 659-2340 fax
actionfund@actionfund.org
https://actionfund.org Link outside of Library of Congress.

Principal publications: Hot Line to Deaf-Blind, weekly; Oh! Say Can You See . . . , online; Questions Kids Ask about Braille, online; Vision Loss and Senior Citizens: Rights, Resources, and Responsibilities, online

Produces and distributes Twin Vision® (print/braille) books free of charge throughout the United States and free braille calendars. Lends Twin Vision® and braille books through the Kenneth Jernigan Library for Blind Children, Tarzana, California, office. An application for library services is available on the AAF website.

American Council of the Blind (ACB)

2200 Wilson Boulevard, Suite 650
Arlington, VA 22201
(202) 467-5081
800-424-8666
(703) 465-5085 fax
info@acb.org
www.acb.org Link outside of Library of Congress.

Principal publications: Braille Forum, monthly; Washington Connection, periodic, by phone or online

National membership organization of persons with visual impairments in the United States. Advocates on their behalf on issues related to civil rights, educational opportunities, vocational training, Social Security benefits, and health and social services. Serves as an information clearinghouse on blindness and provides advisory services on federal legislation. Hosts various discussion and information lists on its server. Has a variety of special interest affiliates for members to choose from.

American Foundation for the Blind

2 Penn Plaza, Suite 1102
New York, NY 10121
(212) 502-7600
(212) 502-7777 fax
afbinfo@afb.net
www.afb.org Link outside of Library of Congress.
Publications: Journal of Visual Impairment and Blindness, bimonthly; AccessWorld, monthly

A national organization serving as an information clearinghouse for people who are visually impaired, professionals, schools, organizations, corporations, and the public. Maintains a toll-free information hotline; conducts research and mounts program initiatives to promote the inclusion of visually impaired persons, especially in the areas of literacy, technology, aging, and employment; and advocates for services and legislation. In addition, AFB also publishes books, pamphlets, and DVDs. AFB maintains the Directory of Services and a database of agencies and service providers. In addition it hosts a number of web-based initiatives, including FamilyConnect an online, multimedia community for parents and families of children with visual impairments created by AFB along with other organizations of similar interests.

Association of Blind Citizens

PO Box 246
Holbrook, MA 02343
(781) 961-1023
(781) 654-2000 news and activities line
(781) 961-0004 fax
president@blindcitizens.org
www.blindcitizens.org Link outside of Library of Congress.

Works to enhance the social, political, and economic well-being of individuals with visual impairments. Serves to increase opportunities in education, employment, culture and recreation, and other life activities. Operates the In Focus monthly radio program in Real Audio format. Offers publications, referrals, and college scholarships for individuals with visual disabilities.

Blinded American Veterans Foundation

PO Box 65900
Washington, DC 20035
(202) 462-4430
800-284-2283
email@bavf.org
www.bavf.org Link outside of Library of Congress.

Principal publication: Raising Cane, irregular

Maintains a nationwide volunteer corps to offer employment networking and rehabilitation counseling for veterans with visual disabilities. Supports medical research on sensory disabilities.

Blinded Veterans Association

477 H Street NW
Washington, DC 20001
(202) 371-8880
800-669-7079
(202) 371-8258 fax
bva@bva.org
www.bva.org Link outside of Library of Congress.

Principal publication: BVA Bulletin, quarterly

National membership organization of veterans with visual impairments. Assists veterans in obtaining benefits. Offers rehabilitation training and gaining access to technology and the opportunities that result from contemporary research. Serves as an advocate on behalf of veterans with visual disabilities before Congress and the Department of Veterans Affairs. Provides services at no charge and membership is not a prerequisite.

Enrichment Audio Resource Services, Inc. (E.A.R.S.)

1202 Lexington Avenue, Suite 316
New York, NY 10028
800-843-6816
info@earsforeyes.org
http://www.earsforeyes.info/ Link outside of Library of Congress.

Provides free audio materials that teach adaptive daily living skills to visually impaired individuals and their caregivers. Maintains an online national directory of low-vision support groups arranged by state and county.

Hadley School for the Blind

700 Elm Street
Winnetka, IL 60093
(847) 446-8111
800-323-4238
(847) 446-0855 fax
info@hadley.edu and student_services@hadley.edu
www.hadley.edu Link outside of Library of Congress.

Principal publications: Connection, online; Generations, online

Offers free distance-education courses to people with visual disabilities, their relatives, and professionals working with visually impaired individuals. Courses include adjusting to blindness and braille reading and writing. Materials are sent by mail or e-mail. Students in the United States and Canada may contact instructors by a toll-free telephone number.

Helen Keller National Center for Deaf-Blind Youths and Adults

141 Middle Neck Road
Sands Point, NY 11050
(516) 944-8900
(516) 944-7302 fax
(516) 944-8637 TDD/TTY
hkncinfo@hknc.org
www.hknc.org Link outside of Library of Congress.

Principle publications: CONNECT! newsletter, three issues per year

A national rehabilitation program for youth and adults with combined hearing and visual impairments. Provides braille instruction, independent living skills, orientation and mobility instruction, and vocational training. Offers library services by providing material in large-print, braille, talking-book, and other accessible formats. Recreational activities include field trips, shopping, swimming, and social events. Offers a variety of services to seniors. Offers professional consultation services to agencies that work with people who are deaf-blind. Performs community outreach programs through its regional and national offices. Offers counseling services from mental health professionals.

Lighthouse International Headquarters

The Sol and Lillian Goldman Building
111 East 59th Street
New York, NY 10022
(212) 821-9200
800-829-0500
(212) 821-9713 TTY
(212) 821-9707 fax
info@lighthouse.org
www.lighthouse.org Link outside of Library of Congress.
http://www.lighthouse.org/about-low-vision-blindness Link outside of Library of Congress. (Vision Health)

Principal publications: EnVision, two issues per year; Sharing Solutions, two issues per year (for support networks)

Offers a range of vision rehabilitation services for children, working-age adults, and older adults and a continuing education program for professionals. Provides evaluations and instruction to prepare children with visual impairments to transition into mainstream public education and offers youth and career services to prepare individuals ages fourteen to twenty-one to succeed in school and in work. Operates the Filomen M. D’Agostino Greenberg Music School and a Music Technology Center. Maintains Vision Health, an online resource on vision impairment and vision rehabilitation. Sells brochures, books, and videos on vision and vision impairment.

Lions Clubs International

300 West 22nd Street
Oak Brook, IL 60523
(630) 571-5466
(630) 571-8890 fax
http://www.lionsclubs.org/EN/index.php Link outside of Library of Congress.

Principal publication: e-Newsletter, monthly, online; The Lion, monthly

Initiates service projects such as sight conservation and diabetes education through more than forty-six thousand clubs in two hundred countries. Provides free professional glaucoma screenings and devices, including braillewriters and white canes. Collects used eyeglasses to distribute in developing countries and sponsors guide dogs. Supports eye research centers worldwide and Lions Club camps for people with visual disabilities.

National Association of Blind Merchants

1837 South Nevada Avenue, PMB #243
Colorado Springs, CO 80905

Organization of people with visual impairments who work with the Randolph-Sheppard vending program or are self-employed. Offers information pertaining to the needs of blind merchants such as taxes, social security, and rehabilitation.

National Federation of the Blind (NFB)

200 East Wells Street
at Jernigan Place
Baltimore, MD 21230
(410) 659-9314
(410) 685-5653 fax
nfb@nfb.org
https://nfb.org/ Link outside of Library of Congress.
www.nfbnet.org Link outside of Library of Congress. (FTP service)

Principal publications: Braille Monitor, monthly; Future Reflections, quarterly; Voice of the Diabetic, quarterly

National membership organization of people with visual disabilities in the United States that seeks their complete societal integration. Monitors state and federal laws and regulations affecting people with visual impairments. Informs members of services available to them and of their rights under the law. Maintains the International Braille and Technology Center for the Blind. Offers NFB-NEWSLINE, a telephone service that provides audio versions of print newspapers and magazines free to subscribers with visual disabilities. Sells assistive devices and publications. Offers many committees and groups for members to join that address a wide range of special interests.

National Industries for the Blind (NIB)

1310 Braddock Place
Alexandria, VA 22314
(703) 310-0500
customer_service@nib.org
www.nib.org Link outside of Library of Congress.

Increases opportunities for economic and personal independence of individuals who are blind by creating, sustaining, and improving employment. Develops business opportunities in the federal, state, and commercial marketplaces for NIB’s network of associated nonprofit agencies. Allocates federal government contracts for SKILCRAFT and other products or services produced through the AbilityOne Program.

The National Research and Training Center on Blindness and Low Vision

Mississippi State University
PO Box 6189
Mississippi State, MS 39762
(662) 325-2694
800-675-7782
(662) 325-8989 fax
NRTC@colled.msstate.edu 
www.blind.msstate.edu Link outside of Library of Congress.

Enhances employment and independent living outcomes for individuals with visual impairments through research, training, and education. Provides a National Technical Assistance Center website for businesses, service providers, and consumers.

National Resource Center for Blind Musicians

Neighborhood Studios of Fairfield County
391 East Washington Avenue
Bridgeport, CT 06608
(203) 366-3300
(203) 368-2847 fax
info@blindmusicstudent.org
www.blindmusicstudent.org Link outside of Library of Congress.

Provides information and referral services for musicians with visual impairments, especially students participating in music activities using braille music or specialized technology. Arranges help with preparation for music theory courses by connecting people with experts in the field, online tutoring, and residential seminars for college-bound musicians. In Connecticut, collaborates with others on programs of learning and enrichment for children and adults through participation in the arts.

Prevent Blindness America

211 West Wacker Drive, Suite 1700
Chicago, IL 60606
800-331-2020
info@preventblindness.org
www.preventblindness.org Link outside of Library of Congress.

Principal publication: Prevent Blindness America News Online, three issues per year,
e-mail

Provides adult and children’s vision screenings; a toll-free information hotline; patient, public, and professional education; workplace programs; and research grants. Sells brochures on vision health and eye safety, some in Spanish, and the Play It Safe with Your Eyes video for children in preschool through second grade.

Pioneers: A Volunteer Network (formerly Telephone Pioneers of America)

1801 California Street, Suite 225
Denver, Colorado 80202
(303) 571-1200
800-872-5995
(303) 572-0520 fax
www.telecompioneers.org Link outside of Library of Congress.

Principal publication: PioneerPress; The Projects and Programs Periodical

Engages current and retired employees of the telecommunications industry in various volunteer projects. Partners with the National Library Service for the Blind and Physically Handicapped and its network of cooperating libraries to repair playback machines of the talking-book program. May visit homes of new readers to demonstrate use of the equipment and may help library staffs inspect returned talking books for damage before the books are loaned to other readers.

Vision Council of America

The Vision Council
225 Reinekers Lane, Suite 700
Alexandria, VA 22314
(703) 548-4560
866-826-0290
(703) 548-4580 fax
info@thevisioncouncil.org
www.thevisioncouncil.org Link outside of Library of Congress.

A global representative for manufactures of vision products and services. 

National Professional Organizations

Academy for Certification of Vision Rehabilitation and Education Professionals

4732 North Oracle Road, Suite #217
Tucson, AZ 85705
(520) 887-6816
(520) 887-6826 fax
gholm@acvrep.org
www.acvrep.org Link outside of Library of Congress.

Certifies professionals who are trained to work with people with visual impairments according to the standards set by the National Commission for Certifying Agencies (NCCA).

American Academy of Ophthalmology

PO Box 7424
San Francisco, CA 94120
800-628-6733 Children’s EyeCare Program
800-272-3937 (800-272-EYES) Diabetes EyeCare Program
800-391-3937 (800-391-EYES) Glaucoma EyeCare Program
866-324-3937 (866-324-EYES) Macular Degeneration EyeCare Program
800-222-3937 (800-222-EYES) Seniors EyeCare Program
(415) 561-8533 fax
customer_service@aao.org
www.aao.org Link outside of Library of Congress.
www.eyecareamerica.org Link outside of Library of Congress.

Principal publications: EyeNet Magazine, ten issues per year; Ophthalmology, monthly

National membership association for ophthalmologists that advances their professional interests to ensure quality eye care to the public. Provides free eye health educational materials and access to medical eye care. Maintains a free eye health information repository. Offers “Find an Eye M.D.,” an online listing of member ophthalmologists who practice in the United States and abroad.

American Optometric Association

243 North Lindbergh Boulevard
St. Louis, MO 63141
(314) 983-4263
(314) 983-7302 fax
www.aoa.org Link outside of Library of Congress.

Principal publications: AOA News Online, eighteen issues per year, online; E-newsletter, monthly, e-mail; Optometry: Journal of the AOA, monthly

National membership organization for optometrists, students of optometry, and paraoptometrics who are dedicated to improving the quality and availability of eye care in the United States. Provides free vision-care services to low-income children and adults. Offers eye assessments to infants in their first year of life. Lobbies the federal government and organizations on behalf of the optometric profession. Offers consumer information and an online tool to locate optometrists.

Association for Education and Rehabilitation of the Blind and Visually Impaired (AER)

1703 North Beauregard Street, Suite 440
Alexandria, VA 22311
(703) 671-4500
877-492-2708
(703) 671-6391 fax
www.aerbvi.org Link outside of Library of Congress.

Principal publications: AER Report, quarterly; Job Exchange, monthly; RE:view, quarterly

National membership organization for professionals who work in all phases of education and rehabilitation of children and adults who are blind or visually impaired. Provides opportunities to members for professional development through publications, certification programs, meetings and conferences, and job exchange services. Provides news and research information. Advocates the importance of maintaining specialized services for blind consumers of all ages.

Council of State Administrators of Vocational Rehabilitation

1 Research Court, Suite 450
Rockville, MD 20850
(301) 519-8023
www.rehabnetwork.org/ Link outside of Library of Congress.
http://www.rehabnetwork.org/resources/state-vr-directors/ Link outside of Library of Congress. (State Directors)

Works to maintain and enhance a national program of public vocational rehabilitation services that empower individuals with physical and mental disabilities to achieve employment, economic self-sufficiency, and societal inclusion.

Eye Bank Association of America

1015 18th Street, NW
Suite 1010
Washington, DC 20036
(202) 775-4999
(202) 429-6036 fax
info@restoresight.org
www.restoresight.org Link outside of Library of Congress.

Principle publications: International Journal of Eye Banking, quarterly

Grants funding to promote research. Certifies eye banks. Writes standards to be used when evaluating and distributing corneal transplants.

National Accreditation Council for Blind and Low Vision Services

PO Box 15368
Chattanooga, TN 37415
(423) 875-2033
(403) 875-2220
Bill@nacblvs.org
http://nacblvs.org Link outside of Library of Congress.

Accredits organizations who serve people with visual impairments.

National Alliance for Eye and Vision Research (NAEVR)

Alliance for Eye and Vision Research (AEVR)
1801 Rockville Pike, Suite 400
Rockville, MD 20852
(240) 221-2905
www.eyeresearch.org Link outside of Library of Congress.

A federation of professional organizations of vision specialists and advocacy associations who advise lawmakers about issues surrounding vision loss.

National Blindness Professional Certification Board (NBPCB)

101 South Trenton Street
Ruston, LA 71270
(318) 257-4554
(318) 257-2259 fax
admin@nbpcb.org
www.nbpcb.org Link outside of Library of Congress.

Certifies qualified specialists to work with individuals with visual impairments through the National Orientation and Mobility Certification and the Recertification Program.  

National Council of State Agencies for the Blind, Inc. (NCSAB)

4600 Valley Road, Suite 100
Lincoln, NE 68510
(717) 783-3784
pearl.vanzandt@nebraska.gov
http://www.ncsab.org/ Link outside of Library of Congress.
http://www.ncsab.org/directory.aspx Link outside of Library of Congress. (NCSAB directory)
www.ncsab.org/bep-directors.aspx Link outside of Library of Congress. (BEP Directors)

Advocates for, and promotes the delivery of, specialized services that enable individuals with visual impairments to achieve personal and vocational independence. Serves as an advisory body to federal agencies. Has an online directory of state agencies that provide services for blind people. Also provides information about the Business Enterprise Program state directors and on the Randolph-Sheppard Act.

Smith-Kettlewell Eye Research Institute
Rehabilitation Engineering Research Center (RERC)

2318 Fillmore Street
San Francisco, CA 94115
(415) 345-2000
(415) 345-2196 fax
RERC@ski.org
www.ski.org/rerc Link outside of Library of Congress.

Principal publication: Smith-Kettlewell Technical File, online

Undertakes projects designed to produce new technology and methods for assessment and rehabilitation of blindness, visual impairment, and deaf-blindness.

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Organizations that Provide Reading Services

American Printing House for the Blind (APH)

1839 Frankfort Avenue
PO Box 6085
Louisville, KY 40206
(502) 895-2405
800-223-1839
(502) 899-2274 fax
info@aph.org
www.aph.org Link outside of Library of Congress.

Principal publications: APH News, monthly, online

Provides educational texts (primary through secondary level) for students who are visually impaired in the United States and its territories. Maintains the Louis Database of Accessible Materials and APH File Repository. Offers Assessment, Bookstore, Daily Living, Family Life, and Products catalogs online in downloadable HTML, PDF, or text files.

Christian Association for Rehabilitation and Education Ministries, Inc.

321 University Drive
Starkville, MS 39759
(662) 323-4999
800-336-2232
care@careministries.org
www.careministries.org Link outside of Library of Congress.

Provides Christian literature to people with visual disabilities. Maintains a directory of Christian agencies that serve people with visual disabilities. Provides a comprehensive index of blindness-related e-mail lists. Offers a toll-free support number for people with visual disabilities. Provides resources for churches who serve people with visual impairments.

Horizons for the Blind

125 Erick Street, A103
Crystal Lake, IL 60014
(815) 444-8800
800-318-2000
(815) 888-8830 fax
mail@horizons-blind.org
www.horizons-blind.org Link outside of Library of Congress.

Converts material into accessible formats upon request. Maintains an active social group for people with visual disabilities in the Chicago area. Offers assistance to businesses and organizations seeking to make themselves more accessible.

International Association of Audio Information Services (IAAIS)

Minnesota Radio Talking Book Network
2200 University Avenue West, Suite 240
Saint Paul, MN 55114-1840
800-280-5325
http://iaais.org Link outside of Library of Congress.

Principal publications: IAAIS Directory, annual; IAAIS Report, quarterly

Maintains an online listing of audio information services in the United States, Canada,  and other parts of the world. Represents radio and information services, dial-in newspapers, and Internet broadcasters that deliver audio broadcasts of daily newspapers and other printed materials to individuals with a visual, physical, or learning disabilities.

Learning Ally

20 Roszel Road
Princeton, NJ 08540
(609) 750-1830 (studio line)
866-732-3585 (main line)
info@learningally.org           
https://wpdev.learningally.org/studio/princeton Link outside of Library of Congress.

Lends digitally recorded textbooks on CDs for all academic levels from kindergarten through graduate school to individuals with a documented visual, physical, or learning disability that substantially limits reading. Requires a one-time registration fee and annual membership fee for individuals and for institutions. Maintains an online book catalog and ordering system. Sells digital playback devices, software, and accessories.

National Braille Press (NBP)

88 Saint Stephen Street
Boston, MA 02115
(617) 266-6160
888-965-8965
(617) 437-0456 fax
orders@nbp.org
www.nbp.org Link outside of Library of Congress.

Principle Publications: Syndicated Columnists Weekly; Our Special, monthly

Promotes literacy for children who are blind and deaf-blind. Produces and sells materials in braille, electronic braille, print/braille, and large-print formats. Also produces tactile graphics. Offers the Children’s Braille Book Club that features a new print/braille book each month. Distributes braille book bags to families of blind and visually impaired children, ages birth to seven. Provides access to standardized assessments for blind students through the National Braille Test Center.

National Library Service for the Blind and Physically Handicapped, Library of Congress

1291 Taylor Street, NW
Washington, DC 20542
(202) 707-5100
800-424-8567 (202) 707-0712 fax
(202) 707-0744 TTY
nls@loc.gov
www.loc.gov/nls/

Principal publications: Braille Book Review, bimonthly; Facts: Books for Blind and Physically Handicapped Individuals, annual; Library Resources for the Blind and Physically Handicapped, annual; Facts: Music for Blind and Physically Handicapped Individuals, annual; News, quarterly and online; Talking Book Topics, bimonthly. Most publications available online and in audio or braille formats.

Administers a free national library program of braille and recorded books and magazines for blind or physically disabled individuals. Distributes reading materials and playback machines through cooperating regional (state) and subregional (local) libraries to eligible borrowers. Lends music materials through the Music Section in Washington, D.C., including scores in braille and large print; magazines and books about music and musicians in braille, large print, and recorded format; and instruction for voice and for instruments in braille and recorded format. Maintains the NLS Union Catalog, a database of records for the NLS braille, recorded, and electronic collections and the special media collections, including large print, of other agencies that serve blind or visually impaired individuals.

Seedlings Braille Books for Children

P.O. Box 51924
Livonia, MI 48151
734-427-8552 phone and fax
800-777-8552 toll-free
info@seedlings.org
http://www.seedlings.org Link outside of Library of Congress.

Engages volunteer braille transcribers and proofreaders to transliterate printed material into braille for children and adolescents at discounted prices. Special initiatives include the Rose Project, which makes World Book Encyclopedia articles available to visually impaired youth upon request; and the Book Angel Program, which makes  two free braille books available to children who are visually impaired.  

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Organizations that Focus on Children

American Association for Pediatric Ophthalmology and Strabismus (AAPOS)

PO Box 193832
San Francisco, CA 94119
(415) 561-8505
(415) 561-8531 fax
aapos@aao.org
www.aapos.org Link outside of Library of Congress.

Principal publication: Journal of AAPOS, bimonthly

Dedicated to ensuring quality medical and surgical eye care for children and adults with strabismus. Offers information on common pediatric eye problems, including strabismus, amblyopia, retinopathy of prematurity, and conjunctivitis. Provides an online database of pediatric ophthalmologists.

Blind Babies Foundation

1814 Franklin Street, Suite 300
Oakland, CA 94612
(510) 446-2229
(510) 446-2262 fax
bbfinfo@blindbabies.org
blindbabies.org Link outside of Library of Congress.

Provides services and programs for families and professionals who work with infants and preschool children with visually impairments or with multiple disabilities along with visual impairment. Offers online factsheets on visual impairments.

Blind Children’s Center

4120 Marathon Street
Los Angeles, CA 90029
(323) 664-2153
(323) 665-3828 fax
www.blindchildrenscenter.org Link outside of Library of Congress.

Principal publication: Light the Way, one or two issues per year, online

Serves children with visual impairments from birth to second grade by providing individualized services in an inclusive setting. Services include an early intervention program for infants, therapeutic support services, and school programs from preschool through second grade. Offers support services for parents and family members of children with visual impairments. Sells booklets, training manuals, and videos.

Children’s Glaucoma Foundation

Two Longfellow Place, Suite 201
Boston, MA 02114
(617) 227-3011
(617) 227-9538 fax
info@childrensglaucoma.com
www.childrensglaucoma.com Link outside of Library of Congress.

Increases the awareness of the symptoms of glaucoma and encourages parents and doctors to screen infants and children for glaucoma. Provides online resources regarding childhood glaucoma.

Helen Keller Foundation for Research and Education

1201 11th Avenue South, Suite 300
Birmingham, AL 35205
(860) 306-2496
(386) 424-1809 fax
www.helenkellerfoundation.org Link outside of Library of Congress.

Advocates for research on treatment for visual and hearing loss. Awards the Helen Keller Prize for Vision Research to promote public awareness of research efforts to end blindness.

Institute for Families

4650 Sunset Boulevard, Mail Stop 111
Los Angeles, CA 90027
(323) 361-4649
(323) 665-7869 fax
info@instituteforfamilies.org
www.instituteforfamilies.org Link outside of Library of Congress.

Principal publications: Retinoblastoma Support News, quarterly; and Parent to Parent, quarterly

Offers information, support, and counseling to families of children with visual impairments stemming from illness. Offers a nationwide telephone counseling service. Publishes educational books and videos. 

Juvenile Diabetes Research Foundation (JDRF) International

26 Broadway
New York, NY 10004
800-533-2873 (800-533-CURE)
(212) 785-9595 fax
info@jdrf.org
http://jdrf.org Link outside of Library of Congress.

Principal publications: Countdown, quarterly; Countdown for Kids, quarterly; Emerging Technologies, monthly, e-mail; Life with Diabetes, monthly, e-mail; Research Frontline, every six to eight weeks, e-mail

Works for the prevention, treatment, and cure of juvenile diabetes. Presents JDRF Kids Online, which facilitates pen-pal relationships and features stories, and an online Diabetes Support Team to provide one-on-one support to families. Provides information about type 1 diabetes, daily care and treatment, coping with emotional demands, and helping delay the onset of complications.

National Association of Parents of Children with Visual Impairments

1 North Lexington Avenue, 8th Floor
White Plains New York 10601
800-562-6265
napvi@guildhealth.org
http://www.spedex.com/napvi/ Link outside of Library of Congress.

Principal publication: Awareness magazine

Maintains a national support and information network and a referral service for parents and families of children who have a visual impairment. Advocates for the educational needs and welfare of children with visual disabilities. Publications are available for purchase in English and Spanish.

National Organization of Parents of Blind Children (NOPBC)

200 East Wells Street, at Jernigan Place
Baltimore, MD 21230
(410) 659-9314
https://nfb.org/parents-and-teachers Link outside of Library of Congress.

Principal publication: Future Reflections, quarterly; in print, via USB thumb drive, by e-mail, and on the NFB website.

Provides information and support to parents and friends of children with visual impairments, serves as advocates, and facilitates the sharing of experience and concerns among parents.

The Vision of Children Foundation

12555 High Bluff Drive, Suite 330
San Diego, CA 92130
(858) 314-7917
(858) 314-7920 fax
info@visionofchildren.org
www.visionofchildren.org Link outside of Library of Congress.

Principal publication: EyeSite, biannual newsletter

Sponsors scientific research to develop therapies and cures for hereditary childhood vision disorders. Provides information and support to families of children who are blind or visually impaired and to service providers.

Vision Research Association for Retinopathy of Prematurity and Related Diseases (ROPARD)

39650 Orchard Hill Place
Novi, MI 48375
(248) 319-0161
800-788-2020
ropard@yahoo.com
www.vrrf.org Link outside of Library of Congress.

Principal publication: Newsletter, two issues per year, online

Dedicated to eliminating low vision and blindness in adults with retinal disorders and in children caused by premature birth and retinal diseases. Funds research into treatment and prevention of such diseases. Maintains a national telephone support group for parents. Publishes educational materials in English and Spanish.

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Organizations that Focus on Eye Diseases and Injuries

American Behcet’s Disease Association

PO Box 80576
Rochester, MI 48308
800-723-4238 (800-7BEHCET)
(480) 247-5377 fax
www.behcets.com Link outside of Library of Congress.

Promotes awareness and understanding of Behcet’s disease, which may cause inflammation in the front or the back of the eye. Provides support and information to individuals with the disease and their families. Educates the medical community about the disease. Offers online resources and physician referrals.

American Diabetes Association (ADA)

National Call Center
1701 North Beauregard Street
Alexandria, VA 22311
800-342-2383 (800-DIABETES)
AskADA@diabetes.org
www.diabetes.org Link outside of Library of Congress.

Principal publications: Diabetes Forecast, monthly, for persons with diabetes and their families; several e-newsletters available, frequency varies, e-mail; journals for the health-care practitioner: DiabetesPro, quarterly

Seeks to prevent and cure diabetes and to help people live with it and manage its complications. Provides information to people with diabetes, their families, health professionals, and the public. Develops materials to help people understand their risks for diabetes and the need for diabetic retinopathy screening. Maintains a national call center. Advocates for the rights of people with diabetes. Funds research and publishes scientific findings in journals for physicians who specialize in diabetes and for general practitioners. Sells publications, CDs, and videos for the public and health professionals.

American Macular Degeneration Foundation

PO Box 515
Northampton, MA 01061
(413) 268-7660
888-622-8527 (888-MACULAR)
amdf@macular.org
www.macular.org Link outside of Library of Congress.

Principal publications: In the Spotlight, newsletter online and in print

Works for the prevention, treatment, and cure of macular degeneration by educating the public, supporting scientific research, and raising funds. Provides educational DVDs to health-care and social service providers, libraries, and individuals.

American Uveitis Society

700 18th Street South, Suite 601
Birmingham, AL 35233
www.uveitissociety.org Link outside of Library of Congress.

Offers uveitis educational opportunities in the medical profession such as classes, seminars, and lectures. Promotes research regarding the disease and its treatments.

Association for Macular Diseases, Inc.

210 East 64th Street, Eighth Floor
New York, NY 10065
(212) 605-3719
(212) 605-3795 fax
association@retinal-research.org
www.macula.org Link outside of Library of Congress.

Principal publication: Eyes Only, quarterly

Provides the Macular Encyclopedia as a reference to those seeking information regarding macular disease. Keeps current on the latest news and research related to eye health. Acts as a national support group for individuals who are adjusting to the problems related to macular diseases and their families.

Benign Essential Blepharospasm Research Foundation

PO Box 12468
Beaumont, TX 77726
(409) 832-0788
(409) 832-0890 fax
bebrf@blepharospasm.org
www.blepharospasm.org Link outside of Library of Congress.

Promotes research into the causes and possible cures of benign essential blepharospasmand offers a variety of publications and resources for people with the condition and their family members.

BrightFocus Foundation

22512 Gateway Center Drive
Clarksburg, MD 20871
800-437-2423
(301) 258-9454
www.brightfocus.org Link outside of Library of Congress.

Offers educational services pertaining to conditions that affect vision or brain function, including glaucoma and macular degeneration. Offers free advice through their toll-free number.

Coat’s Disease Information for Parents

http://www.coatsdisease.org/index.html Link outside of Library of Congress.

A resource for parents providing the latest information about Coat’s Disease. Offers a supportive forum for parents of children with the condition.

The Foundation Fighting Blindness (FFB)

7168 Columbia Gateway Drive, Suite 110
Columbia, MD 21046
(410) 423-0600
800-683-5555
(410) 872-0639 TDD
800-683-5551 TDD
(410) 872-0438 fax
info@blindness.org
www.blindness.org Link outside of Library of Congress.

Principal publications: InFocus, published three times a year

Funds research to find treatments and cures for retinal degenerative diseases, including retinitis pigmentosa, macular degeneration, and Usher syndrome. Provides information and referral services.

The Glaucoma Foundation

80 Maiden Lane, Suite 700
New York, NY 10038
(212) 285-0080
(212) 651-1888 fax
info@glaucomafoundation.org
www.glaucomafoundation.org Link outside of Library of Congress.

Principal publication: Eye to Eye, two issues per year

Funds research to determine the causes of glaucoma, improve methods of treatment, and develop cures for the disease. Provides online resources and online support groups.

Glaucoma Research Foundation

251 Post Street, Suite 600
San Francisco, CA 94108
(415) 986-3162
800-826-6693
(415) 986-3763 fax
grf@glaucoma.org
www.glaucoma.org Link outside of Library of Congress.

Principal publication: Gleams, three issues per year, print and e-mail

A nonprofit organization dedicated to finding a cure for glaucoma through research and education. Provides online resources and free publications on glaucoma.

Glaucoma Service Foundation to Prevent Blindness

Wills Eye Hospital
840 Walnut Street, Suite 1130
Philadelphia, PA 19107
(215) 928-3190
(215) 928-3194 fax
www.willsglaucoma.org Link outside of Library of Congress.

Principal publication: Searchlight on Glaucoma, three issues per year, print and online

Answers questions about glaucoma on the first and third Wednesday of every month in the chat room. Offers information online.

HearSeeHope

17837 1st Avenue South, PMB 2
Normandy Park, WA 98148
(206) 451-8155
(206) 299-9519
info@hearseehope.com
www.hearseehope.com Link outside of Library of Congress.

Funds Usher syndrome research and raises awareness of the disorder. Connects parents of children with the illness to each other to create a support network.

International Children’s Anophthalmia Network (ICAN)

5501 Old York Road
Genetics, Levy 2 West
Philadelphia, PA 19141
800-580-4226
info@anophthalmia.org
www.anophthalmia.org Link outside of Library of Congress.

Principle publications: The Conformer, newsletter

Offers information to parents of children with anophthalmia or microphthalmia. Organizes social functions for people with anophthalmia or microphthalmia and their families.

Macula Vision Research Foundation

One Tower Bridge
100 Front Street, Suite 300
West Conshohocken, PA 19428
(610) 668-6705
866-462-2852 (866-4MACULA)
(610) 667-1459 fax
lea@mvrf.org
www.mvrf.org Link outside of Library of Congress.

Seeks the cause, prevention, and treatment of macula diseases. Offers public education programs, small support groups, and a toll-free hotline. Awards research grants and conducts conferences.

Macular Degeneration Foundation

PO Box 531313
Henderson, NV 89053
888-633-3937
(702) 450-3396 fax
eyesight@eyesight.org
www.eyesight.org Link outside of Library of Congress.

Principal publication: The Magnifier, monthly, print, and e-mail

Seeks to develop cures for macular degeneration and to educate patients, professionals, and the public about methods of prevention and treatment.

Macular Degeneration Partnership
8733 Beverly Boulevard, Suite 201
Los Angeles, CA 90048
888-430-9898
(310) 623-1837 fax
www.amd.org/site/PageServer Link outside of Library of Congress.

Principal publication: e-Newsletter, monthly, e-mail and online

Provides updates on the latest news related to macular degeneration. Funds research into new treatments and possible cure for the disease.

MD (Macular Degeneration)Support

3600 Blue Ridge Boulevard
Grandview, MO 64030
(816) 761-7080 telephone and fax
888-866-6148
director@mdsupport.org
www.mdsupport.org Link outside of Library of Congress.

Offers information online for people with macular degeneration and similar retinal diseases. From its website, users have access to lists of agencies and organizations eye-care hospitals, and low-vision aids distributors. Provides reading materials in accessible formats. Maintains a national database of alternative transportation services in the United States for individuals with vision impairments.

National Keratoconus Foundation (NKCF)

6222 Wilshire Boulevard, Suite 260
Los Angeles, CA 90048
(310) 623-4466
800-521-2524
(310) 623-1837 fax
info@nkcf.org
www.nkcf.org Link outside of Library of Congress.

Principal publication: NKCF Newsletter, three issues per year

Increases the awareness and understanding of keratoconus by providing information to patients, their families, and eye-care professionals; maintaining a patient registry and physician referral; organizing support groups and an online discussion group; and supporting scientific research.

National Marfan Foundation

22 Manhasset Avenue
Port Washington, NY 11050
(516) 883-8712
800-862-7326, ext. 10 (800-8-MARFAN)
(516) 883-8040 fax
staff@marfan.org
www.marfan.org Link outside of Library of Congress.

Principal publication: Connective Issues, quarterly

Provides information about Marfan syndrome and related disorders to patients, family members, and the health-care community. Promotes research into the disease. Acts as a support network for individuals with the illness and their families.

National Organization for Albinism and Hypopigmentation (NOAH)

PO Box 959
East Hampstead, NH 03826
(603) 887-2310
800-473-2310
800-648-2310 fax
info@albinism.org
www.albinism.org Link outside of Library of Congress.

Principal publication: Albinism InSight, quarterly

Offers information and support to individuals with albinism and their families. Provides services through local chapters, an online community, biannual national conferences and biannual family summer camps. Educates the public and professionals about albinism and encourages research.

The Ocular Immunology and Uveitis Foundation

Five Cambridge Center, 8th Floor
Cambridge, MA 02142
(617) 494-1431 ext. 112
www.uveitis.org Link outside of Library of Congress.

A nonprofit seeking to find a cure for ocular immunology through funding and conducting research projects. Seeks to educate more doctors about proper care for the disease.  Provides support groups for people with the condition and their families.

Ocular Melanoma Foundation (OFM)

1000 Connecticut Avenue NW, Suite 900
Washington, DC 20036
(202) 684-9380
800-663-5930
admin@ocularmelanoma.org
www.ocularmelanoma.org Link outside of Library of Congress.

Promotes awareness of ocular melanoma and advocates for funds to research the condition.

One Small Voice Foundation

PO Box 644
Elmhurst, IL 60126
onesmallvoice@att.net
www.onesmallvoicefoundation.org Link outside of Library of Congress.

Principal publication: One Small Voice Foundation newsletter, annual, online

Provides information about optic nerve hypoplasia and hydrocephalus. Funds research for these disorder.

Pseudoxanthoma Elasticum International
4301 Connecticut Avenue NW, Suite 404
Washington, DC 20008
(202) 362-9599
(202) 966-8553 fax
info@pxe.org
www.pxe.org Link outside of Library of Congress.

Promotes research into pseudoxanthoma elasticum, a genetic disease that can cause blindness. Offers information about research and treatments of the disease.

Research to Prevent Blindness

645 Madison Avenue, Floor 21
New York, NY 10022
(212) 752-4333
800-621-0026
(212) 688-6231 fax
inforequest@rpbusa.org
http://www.rpbusa.org/rpb/ Link outside of Library of Congress.

Principal publication: Eye Research News, annual

Maintains an online research library of material relating to visual disorder and a directory of practitioners who work with people with visual disabilities. Provides eye research-grant support to scientific institutions in the United States. Seeks to develop treatments and cures for diseases that damage sight.

Retinoblastoma International

18030 Brookhurst Street, Box 408
Fountain Valley, CA 92708
info@retinoblastoma.net
www.retinoblastoma.net Link outside of Library of Congress.

Promotes education of, treatments for, and research into retinoblastoma. Offers information on its website for those with the disease, their family members, and medical professionals. Offers training opportunities for those in the health-care field who work with patients with retinoblastoma.

RP International

PO Box 900
Woodland Hills, CA 91365
(818) 992-0500
800-344-4877 (1-800-FIGHT-RP)
(818) 992-3265 fax
info@rpinternational.org
www.rpinternational.org Link outside of Library of Congress.

Provides information on and funds research into possible cures for retinitis pigmentosa. Makes films accessible to people who have a visual impairment through TheatreVision (www.theatrevision.org Link outside of Library of Congress.).

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Organizations that Provide Financial and Other Assistance

Blindness: Learning in New Dimensions (BLIND) Inc.

100 East 22nd Street
Minneapolis, MN 55404
(612) 872-0100
(612) 872-9358
info@blindinc.org
www.blindinc.org Link outside of Library of Congress.

BLIND Inc. is a vocational rehabilitation organization for people who are blind and visually impaired offering a residential blindness immersion program that includes instruction in braille, orientation and mobility skills, and home and life skills. Offers computer instruction, job-seeking skills, and other skills to help people who are blind or visually impaired gain employment. Provides referrals to resources that address the needs of people who are blind or visually impaired.

Carroll Center for the Blind

770 Centre Street
Newton, MA 02458
(617) 969-6200
800-852-3131
(617) 969-6204 fax
http://www.carroll.org Link outside of Library of Congress.

Live-in vocational rehabilitation center that offers independent living skills courses for people with visual impairments. Offers assistive technology training, orientation and mobility instruction, employment training, senior services, and recreation.

Center for the Visually Impaired

739 West Peachtree Street, NW
Atlanta, GA 30308
(404) 875-9011
(404) 607-0062 fax
info@cviga.org
www.cviga.org Link outside of Library of Congress.

Principle publications: CVI News, CVI E-news

Teaches braille literacy, braille music, and Nemeth (braille math) code. Offers employment opportunities through its contact center. Uses an information hotline to offer the latest news to the blind community. Offers assistive technology instruction for youth and adults. Provides travel and mobility training. Offers early intervention programs to children as well as instruction in classroom environment through its Social, Therapeutic, Academic, and Recreational Services (STARS) program and a summer camp. Hosts support groups for adults and children and has a retail store on the premises selling material of interest to people with visual impairments and their families.

Envision Rehabilitation Center

610 North Main Street
Wichita, KS 67203
(316) 440-1600
866-319-4646
(316) 425-7165 fax
rehab@envisionus.com
www.envisionus.com Link outside of Library of Congress.

Offers vocational rehabilitation services and job placement and employment assistance to people with visual disabilities. Offers assistive technology products and instruction in how to use them as well as training in independent living skills and orientation and mobility instruction. Provides recreational programs, including camps for children and teens. Offers early intervention assistance for children as well as support groups for parents. Coordinates training opportunities for paraprofessionals who work with people with visual disabilities.

Eye Dog Foundation for the Blind–Training Center

8252 South 15th Avenue
Phoenix, AZ 85041
(602) 276-0051
800-393-3641
eyedog@eyedogfoundation.org
www.eyedogfoundation.org Link outside of Library of Congress.

Offers training for the use of guide dogs by people with visual impairments.

Foundation for Blind Children

1235 East Harmont Drive
Phoenix, AZ 85020
www.seeitourway.org Link outside of Library of Congress.

Provides computer training, independent living skills, communication skills, orientation and mobility instruction, and braille literacy. Offers financial assistance to parents of children with visual impairments; transition services; and recreational activities, including camps.

Guide Dogs for the Blind

350 Los Ranchitos Road
San Rafael, CA 94903
(415) 499-4000
800-295-4050
(415) 499-4035 fax
information@guidedogs.com
http://welcome.guidedogs.com Link outside of Library of Congress.

Principle publications: Guide Dog News; Alumni News

Offers training for the appropriate use of guide dogs by people with visual impairments. Offers continuing education courses to orientation and mobility instructors. Provides specialized services to children and seniors.

Guiding Eyes for the Blind

611 Granite Springs Road
Yorktown Heights, NY 10598
(914) 245-4024
(800) 942-0149
(914) 245-1609 fax
info@guidingeyes.org
www.guidingeyes.org Link outside of Library of Congress.

A 501(c)(3) nonprofit organization that provides guide dogs, training, and lifetime support of its services to the blind and visually impaired at no charge. 

The Hatlen Center for the Blind, a Program of Junior Blind of America

2430 Road 20, #B112
San Pablo, CA 94806
(510) 234-4984
(510) 234-4986 fax
pmaffei@juniorblind.org
www.hcblind.org Link outside of Library of Congress.

A live-in vocational rehabilitation center in northern California. Offers residents independent living skills, orientation and mobility instruction, and assistive technology training. Offers courses in financial management, and have a pre-vocational training program with the possibility of temporary placement. Provides recreational learning opportunities and braille instruction.

Knights Templar Eye Foundation, Inc.

1033 Long Prairie Road, Suite 5
Flower Mound, TX 75022
(214) 888-0220
(214) 888-0230 fax
Manager@KTEF.US
www.knightstemplar.org/ktef/ Link outside of Library of Congress.

Offers one-on-one patient support through the Seniors Eye Care Program. Funds research into nonsurgical treatments for strabismus (a condition that causes the eyes to cross).

Low Vision Center

4905 Del Ray Avenue, Suite 504
Bethesda, MD 20814
(301) 951-4444
lowvisionctr@aol.com
www.lowvisioninfo.org Link outside of Library of Congress.

Demonstrates various assistive technologies that are available for purchase. Offers community outreach services and educational opportunities. Provides referral services for physicians, assistive technology, and social services.

New Eyes for the Needy

549 Millburn Avenue, PO Box 332
Short Hills, NJ 07078
(973) 376-4903
www.new-eyes.org Link outside of Library of Congress.

Provides vouchers for United States residents with low incomes to obtain new prescription eyeglasses. Sends reusable eyeglasses to medical missions and welfare agencies overseas for distribution in developing nations.

The Seeing Eye

10 Washington Valley Road
PO Box 375
Morristown, NJ 07963
(973) 539-4425
800-539-4425
(973) 539-0922 fax
info@seeingeye.org
www.seeingeye.org Link outside of Library of Congress.

Principle publications: The Seeing Eye Guide

Trains dogs to guide blind and/or visually impaired individuals and provides instruction to their partners. Services are provided at cost.

Sight for Students

800-877-7195
888-290-4964 recorded information
(916) 858-5388 fax
sfsinfo@vsp.com
www.sightforstudents.org Link outside of Library of Congress.
https://es.vsp.com/enes/ Link outside of Library of Congress. (Spanish)

Provides eye examinations and glasses to low-income children under eighteen years of age.

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Federal Agencies

Architectural and Transportation Barriers Compliance Board (Access Board)

1331 F Street NW, Suite 1000
Washington, DC 20004
(202) 272-0080
800-872-2253
(202) 272-0081 fax
(202) 272-0082 TDD/TTY
(800) 993-2822 toll-free TDD/TTY
info@access-board.gov
www.access-board.gov

The United States Access Board seeks to provide information on accessibility requirements for buildings, modes of transportation, telecommunications infrastructure, and information technology. Offers training on how to meet accessibility guidelines.

Blind Rehabilitation Service

U.S. Department of Veterans Affairs

810 Vermont Avenue, NW
Washington, DC 20420
(202) 461-7317
(202) 495-5473 fax
Kathleen.Dziak@va.gov
www.va.gov/blindrehab

Offers training in skills for daily living such as orientation and mobility and home care. Provides counselling services to the veterans with visual disabilities and their families.

Disability Rights Office

Federal Communications Commission: Consumer and Governmental Affairs Bureau

445 12th Street, SW
Washington, DC 20554
(202) 418-2521
888-225-5322
888-835-5322 TDD/TTY
dro@fcc.gov
www.fcc.gov/cib/dro

Seeks to ensure that the needs of people with disabilities are met as telecommunications technology advances. Offers technical advice and assistance to agencies, consumers, and those in the telecommunications field.

Equal Employment Opportunity Commission

131 M Street, NE
Washington, DC 20507
(202) 663-4900
800-669-4000
(202) 663-4494 TDD/TTY
800-669-6820 toll-free TDD/TTY
info@eeoc.gov
www.eeoc.gov

The federal agency charged with enforcing Section 501 of the Rehabilitation Act, the law that prohibits employment discrimination based on disability.

Independent Living Services for Older Individuals Who Are Blind

Office of Special Education and Rehabilitation Services
U.S. Department of Education
400 Maryland Avenue, SW
Washington, DC 20202
800-872-5327
800-437-0833 TTY
http://www2.ed.gov/programs/rsailob/index.html

Through state agencies for the people with visual disabilities, Independent Living Services for Older Individuals Who Are Blind offers training in independent living skills, assistive technology, and orientation and mobility. Provides support services such as counseling to individuals and families.

National Library Service for the Blind and Physically Handicapped, Library of Congress

1291 Taylor Street, NW
Washington, DC 20542
(202) 707-5100
800-424-8567
(202) 707-0712 fax
(202) 707-0744 TTY
nls@loc.gov
www.loc.gov/nls/

Principal publications: Braille Book Review, bimonthly; Facts: Books for Blind and Physically Handicapped Individuals, annual; Library Resources for the Blind and Physically Handicapped, annual; Facts: Music for Blind and Physically Handicapped Individuals, annual; News, quarterly and online; Talking Book Topics, bimonthly. Most publications available online and in audio or braille formats.

Administers a free national library program of braille and recorded books and magazines for blind or physically disabled individuals. Distributes reading materials and playback machines through cooperating regional (state) and subregional (local) libraries to eligible borrowers. Lends music materials through the Music Section in Washington, D.C., including scores in braille and large print; magazines and books about music and musicians in braille, large print, and recorded format; and instruction for voice and for instruments in braille and recorded format. Maintains the NLS Union Catalog, a database of records for the NLS braille, recorded, and electronic collections and the special media collections, including large print, of other agencies that serve blind or visually impaired individuals.

National Diabetes Information Clearinghouse

1 Information Way
Bethesda, MD 20892-3560
800-860-8747
866-569-1162 TTY
(703) 738-4929 fax
ndic@info.niddk.nih.gov
www.diabetes.niddk.nih.gov

Principal publication: Diabetes Dateline, two issues per year

Responds to inquiries regarding diabetes and vision disorders which result from diabetes. Distributes professional and patient education publications, including factsheets, and booklets. In addition, they also publish the Diabetes Dictionary. Material is available in English and Spanish.

National Eye Institute

National Institutes of Health
2020 Vision Place
Bethesda, MD 20892
(301) 496-5248
2020@nei.nih.gov
www.nei.nih.gov
www.nei.nih.gov/health/espanol/index.asp (Spanish)

Conducts and supports research on eye diseases and vision disorders. Offers professional and public education programs, including a school curriculum on vision for grades 4–8 and a traveling exhibit.

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Global Organizations

CBM-US (Christian Blind Mission)

450 East Park Avenue
Greenville, SC 29601
(864) 239-0065
800-937-2264
(864) 239-0069 fax
info@cbmus.org
http://www.cbmus.org/site/PageServer Link outside of Library of Congress.

Works to improve the quality of life for millions of people with disabilities living in the world’s most disadvantaged societies. Uses a sustainable, holistic approach that includes prevention, treatment, education/rehabilitation, and economic empowerment.

FOCUS Families

support_families@focusfamilies.org
www.focusfamilies.org Link outside of Library of Congress.

Principal publication: Newsletter

Provides information to individuals with optic nerve hypoplasia and septo-optic dysplasia, their families, and professionals. Hosts an e-mail support group. Has divisions in Germany, the United Kingdom, and the United States.

Helen Keller International

352 Park Avenue South, 12th Floor
New York, NY 10010
(212) 532-0544
877-535-5374 (877-KELLER4)
(212) 532-6014 fax
info@hki.org
http://www.hki.org Link outside of Library of Congress.

Founded in 1915 by Helen Keller and George Kessler, the mission of Helen Keller International (HKI) is to save the sight of disadvantaged individuals in 21 countries in Africa and Asia, as well as in the United States. Combats the causes and consequences of blindness and malnutrition by establishing programs based on evidence and research in vision, health, and nutrition.

The International Agency for the Prevention of Blindness (IAPB)

London School of Hygiene and Tropical Medicine, Keppel Street
London, WC1E 7HT (United Kingdom)
44 (0) 207 958 8394
communications@iapb.org
www.iapb.org Link outside of Library of Congress.

Principal publication: IAPB Blog, online; IAPB Focus, members-only newsletter ; Vision 20/20, newsletter

Mobilizes resources for blindness prevention activities such as disseminating ideas and information on successful approaches to eye care delivery.

International Council for Education of People with Visual Impairment

sgicevi@vsnl.net
http://icevi.org Link outside of Library of Congress.

Principal publication: The Educator, two issues per year, online; ICEVI E-News, two issues per year, online

Serves as a global multiregional association of individuals and organizations that promotes equal access and full participation in education for children and youth with visual impairments by changing public attitudes, encouraging community participation, and facilitating the support of nongovernmental organizations.

International Eye Foundation

10801 Connecticut Avenue
Kensington, MD 20895
(240) 290-0263
(240) 290-0269 fax
ief@iefusa.org and info@iefusa.org
http://iefusa.org/ Link outside of Library of Congress.

Principal publication: Eye to Eye, annual

Works to prevent and treat blindness and restore vision in the developing world. Assists with staffing and administrative support in eye hospitals and clinics, creating partnerships with local health organizations, and enhancing management and medical skills at treatment facilities. Makes ophthalmic products available at affordable prices and offers an online catalog for eye care providers to request a quote for products intended for use outside of the United States.

International Federation of Library Associations and Institutions (IFLA) Section of Libraries for the Blind

www.ifla.org/VII/s31/index.htm Link outside of Library of Congress.

Principal publication: Newsletter, two issues per year, online and in braille

Promotes national and international cooperation in delivering accessible library and information services to readers who are blind and visually impaired. Encourages research and development to improve access to information for people with visual impairments. Acts as a forum for discussing topics such as technical standards, standardization of special format materials, bibliographic control, problems of copyright, and the identification of the locations of special format collections.

International Foundation for Optic Nerve Disease (IFOND)

PO Box 777
Cornwall, NY 12518
(657) 2067250
ifondorg@gmail.com
www.ifond.org Link outside of Library of Congress.

Promotes research into the causes, prevention, and treatment of optic nerve disease.

International Society for Eye Research (ISER)

PO Box 193940
San Francisco, CA 94119
(415) 561-8569
mail@iser.org
www.iser.org Link outside of Library of Congress.

Principal publication: Experimental Eye Research, monthly

Works to support and foster eye research throughout the world by enhancing international communication and collaboration.

Sightsavers International

One Boston Place, Suite 2600
Boston, MA 02108
info@sightsaversusa.org
www.sightsaversusa.org Link outside of Library of Congress.

Principal publication: Horizons, quarterly

Plans and supports a range of eye care services in developing countries, offers outreach programs for rural areas, and promotes the integration of children who have a visual impairment into mainstream schools. Provides education, counseling, and training to blind individuals.

Surgical Eye Expeditions (SEE) International, Inc.

6950 Hollister Avenue, Suite 250
Santa Barbara, CA 93117
(805) 963-3303
877-937-3133
(805) 965-3564 fax
info@seeintl.org
www.seeintl.org Link outside of Library of Congress.

Provides medical, surgical, and educational services by volunteer ophthalmic surgeons with the primary objective of restoring sight to individuals who are blind and disadvantaged worldwide.

Unite For Sight

234 Church Street, 15th Floor
New Haven, CT 06510
jstaple@uniteforsight.org
www.uniteforsight.org Link outside of Library of Congress.

Unite For Sight supports eye clinics worldwide. Applies best practices in eye care, public health, volunteerism, and social entrepreneurship to achieve the goal of high-quality eye care for all.

World Blind Union

(Union Mondiale des Aveugles)
1929 Bayview Avenue
Toronto, Ontario
Canada M4G3E8
(416) 486-9698
(416) 486-8107 fax
info@wbuoffice.org
www.worldblindunion.org Link outside of Library of Congress. (in English, French, and Spanish)

Principal publications: The Voice of the WBU, WBU Newsletter

Serves as a nonpolitical, nongovernmental coalition of representatives from various associations for people who are blind and visually impaired and from agencies providing services to them. Works for the prevention and treatment of blindness, promotes the equal societal participation of people who are blind or visually impaired, and serves as an international forum for the exchange of knowledge and experience in the field of blindness.

World Services for the Blind

2811 Fair Park Boulevard
Little Rock, AR 72204
(501) 664-7100
800-248-0734
(501) 664-2743 fax
training@wsblind.org
www.wsblind.org Link outside of Library of Congress.

Offers counseling services, including physiological testing and evaluations, to people with visual disabilities. Offers training in independent living skills such as orientation and mobility education. Provides job-readiness and vocational training and .

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Selected Bibliography

All About Vision. www.allaboutvision.com Link outside of Library of Congress. (accessed February 28, 2014).

American Foundation for the Blind. Braille Bug Site. http://braillebug.afb.org Link outside of Library of Congress. (accessed February 28, 2014).

American Foundation for the Blind. Helen Keller Kids Museum Online. http://braillebug.afb.org/hkmuseum.asp Link outside of Library of Congress. (accessed February 28, 2014).

American Foundation for the Blind. AFB Directory of Services for Blind and Visually Impaired Persons in the United States and Canada. www.afb.org/directory.aspx?action=browse (accessed December 3, 2013).

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Revised by Christopher Corrigan
Reference Section
2014


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Posted on 2014-05-29